The Epilepsy Leadership Council (ELC) is committed to improving the lives of people living with epilepsy by facilitating collaboration among our members. Our mission is to empower the epilepsy community by identifying and addressing the gaps in support, education, clinical care, and research.

2024 Activities

Membership: 

• Update process to onboard new members
• Develop new membership categories and obtain approval from ELC vote

Community

• Revamp quarterly membership meeting agendas to include member spotlights, advocacy updates, and community updates
• Introduce townhall meetings on topics like TBI, seizures in the elderly, etc.

Advocacy

• Re-establish advocacy committee
• Analyze policy agenda and intersection with other organization's advocacy priorities
• Select topic from policy agenda and develop resource/host education session
• Establish system to report summarize advocacy activities and their impact on an annual basis

Communications

• Establish communications committee
• Develop communications calendar 
• Establish social media presence

Special projects

• Convene workgroup to review epidemiological data on epilepsy and educate ELC members on using data in communications
• Fundraise to support development of an online resource library

The Epilepsy Leadership Council is supported in part by a grant from Eisai, Inc.